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Can A 23 Year Old Take The At Home Drug For SMA?
My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!
I've been on Spinraza since 2018. I feel it's the best for me. But you should ask the neurologist. Even seek out a second opinion. I'm sure this wasn't the answer you were looking for.
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
Since I’ve been on evrysi , I do not have twitches anymore. But everyone’s different so the choice is try them both with using a notepad to document when you do twitch
For Those That Take Treatment For Your SMA: What Has Been Your Most Noticeable Change, If Any?
How Often Does Everyone See There Neurologist, Especially Type 3?
Enkrat na 4 mesece. Pa še to zaradi doziranja zdravila spinraza
Tremors And SMA Type 3
My doctor believes I have SMA Type 3. Recently, I have discovered I have tremors. I think I've always had them, but didn't pay attention to them, blowing them off due to being hungry. However, I've also noticed that I have them when I'm not hungry. I don't always have them and they are not violent, but are annoying at times. 😆
Is this one of the many symptoms of SMA Type 3?
Zdravo, tudi jaz imam SMA tip3, pa nimam tresenja. Razen osteoporoze nimam posebnih problemov. Le pogumno.
Lp🥰
Is There Any Research On The Interaction Between Antidepressants And Either Evrysdi Or Spinraza?
SMA Adults, What Have Your Been Your Greatest Accomplishments And Some Struggles You Have Had.
Growing up, at what age did you understand or had been told you have not something wrong with you but that you have special muscles unlike the other kids? (Thats what we call connors condition, to help his older 8 yr old brother understand) connor is type 1 and is currently 7 months old. Recvd zolgemsa on halloween. Didnt finish our last loading dose of spinraza. If you currently do maintaince dosing of spinraza has it been successful for you? Pro? Cons? Effectiveness still? At what age did you… read more
Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg
I saw my neurologist yesterday and I requested a higher dosage for my next injection, which is due in October. My neurologist needs to check with my insurance. Stay tuned...
Hi, you are correct. My Biogen Fam and my neuro said after the first of the year. I get mine on the 31. Good luck tomorrow You got this!!❤️💪
List Of Questions To Ask Neuromuscular Specialist For First Appointment After Finding Sma Type 4 In Myself
I’m scheduled for my first appt with a specialist to address finding sma in my genetic testing markers when pregnant with my child at 12 weeks. Apparently I have type 4 and looking to get some truth about what this means for me. I’m 34. Anything specific I should ask in addition to the obvious questions?
Christina, this breaks my heart. It can be hard to share and ask for help. Do you have a good neuro team?
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