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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg

A mySMAteam Member asked a question 💭
Newport Beach, CA

I saw my neurologist yesterday and I requested a higher dosage for my next injection, which is due in October. My neurologist needs to check with my insurance. Stay tuned...

September 24
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A mySMAteam Member

My understanding was that they are awaiting submission before we are able to get the higher dose. I believe it should hopefully be available to us by next year. Please let me know if your neuro says otherwise! Getting my injection tomorrow.

October 16
A mySMAteam Member

I’ll keep you posted. My next inspection isn’t due until the end of October. I should know a week or two before.

September 26
A mySMAteam Member

I read that children are also being tested for higher doses. I wasn’t aware that the higher dose has been approved. I will look into it further. Good luck, looking forward to your next post on it.

September 25
A mySMAteam Member

Hi, you are correct. My Biogen Fam and my neuro said after the first of the year. I get mine on the 31. Good luck tomorrow You got this!!❤️💪

October 16

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