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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Is There A Particular Diet And/or Food That Has Slowed Progression? E.g. The Keto Diet Has Been Used For Other Types Of Neuro Diseases.

By A mySMAteam Member
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Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg

By A mySMAteam Member 4 answers
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What’s One Thing About SMA That People Rarely Discuss But Should?

By A mySMAteam Member 2 answers
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Earning Money While On Disability

By A mySMAteam Member 1 answer
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265 questions

Does Or Has Anyone Taking Creatine?

A mySMAteam Member asked a question 💭
East Berlin, PA
A mySMAteam Member

My cousin took classes on health and fitness. She told me she’s been reading up on creatine . She feels I would benefit from it . To try and help save what muscle I have . I’ll have to look into it… read more

12 hours ago

What Advice Are You Grateful To Share With Others About SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

You’re right it’s better to focus on the positive than the negative.

1 day ago

Is Anyone Planning On Going To The Next Cure SMA Conference? It’s In CA From June 26-29. Scholarships Are Available From Cure SMA.

A mySMAteam Member asked a question 💭
East Stroudsburg, PA
A mySMAteam Member

Thank you, I will ask them via email.

December 10, 2024

Sorry, I Have SBMA. Are There Any Medical Procedures That Can Stabilize The Progression Of The Disease?

A mySMAteam Member asked a question 💭
Colorado Springs, CO

Are We Close To Having A Medical Procedure To Stabilize The Progression Of The Disease?

A mySMAteam Member asked a question 💭
Colorado Springs, CO

What Kind Of Supplements Does Anyone Take To Help Maintain Muscle?

A mySMAteam Member asked a question 💭
East Berlin, PA
A mySMAteam Member

That is a great question!

November 26, 2024

What’s One Thing About SMA That People Rarely Discuss But Should?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

That the disabled, even in the richest country in the world, are the most marginalized people, without a letter in 'their' alphabet. It's ridiculous that we can not get caregiving help unless we are… read more

December 16, 2024

Hello Im Here To Ask When To Notice Some Improvement After Taking Evrysdi My 6 Months Old Baby Started Like 3 Days Ago

A mySMAteam Member asked a question 💭
Algeria

Any Idea When Risdipalm Is Going To Be Available To Type 4 And Does Anyone Regret Taking In Past?

A mySMAteam Member asked a question 💭
Scotland, AR

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Staying on track

November 17, 2024
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