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SMA in the News

New Study: Zolgensma May Benefit Adults With SMA Types 2 and 3

Zolgensma, a formulation of onasemnogene abeparvovec-xioi, is a type of gene therapy that can hel...
Posted 11/16/2022

New Study: Zolgensma May Benefit Adults With SMA Types 2 and 3

Zolgensma, a formulation of onasemnogene abeparvovec-xioi, is a type of gene therapy that can hel...
Posted 11/16/2022
read more >

Study Recruiting for New Add-On SMA Treatment

Researchers are studying a potential new treatment called taldefgrobep alfa for spinal muscular a...
Posted 08/17/2022

Study Recruiting for New Add-On SMA Treatment

Researchers are studying a potential new treatment called taldefgrobep alfa for spinal muscular a...
Posted 08/17/2022
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Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi

New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy (...
Posted 06/15/2022

Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi

New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy (...
Posted 06/15/2022
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Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find

Nusinersen, sold as Spinraza, is approved for both adults and children with spinal muscular atrop...
Posted 04/13/2022

Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find

Nusinersen, sold as Spinraza, is approved for both adults and children with spinal muscular atrop...
Posted 04/13/2022
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Gaming With SMA: Choosing a Gaming Platform

Choosing a gaming console could be a bit tricky when it comes to all the things spinal muscular a...
Posted 03/16/2022

Gaming With SMA: Choosing a Gaming Platform

Choosing a gaming console could be a bit tricky when it comes to all the things spinal muscular a...
Posted 03/16/2022
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Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment

The researchers who discovered and developed the spinal muscular atrophy (SMA) treatment Evrysdi...
Posted 03/09/2022

Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment

The researchers who discovered and developed the spinal muscular atrophy (SMA) treatment Evrysdi...
Posted 03/09/2022
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Living as a Superhero

As we all know, spinal muscular atrophy (SMA) is a neuromuscular disease caused by a mutation in ...
Posted 03/02/2022

Living as a Superhero

As we all know, spinal muscular atrophy (SMA) is a neuromuscular disease caused by a mutation in ...
Posted 03/02/2022
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Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1

A recent study has found that combining Zolgensma and Spinraza does not improve motor or respirat...
Posted 02/23/2022

Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1

A recent study has found that combining Zolgensma and Spinraza does not improve motor or respirat...
Posted 02/23/2022
read more >

The Eyes Have It: TD Pilot Harnesses iPadOS 15, Lets Users Control Device With Their Eyes

The TD Pilot leverages accessibility features, such as eye tracking, from the newest iPad operati...
Posted 02/16/2022

The Eyes Have It: TD Pilot Harnesses iPadOS 15, Lets Users Control Device With Their Eyes

The TD Pilot leverages accessibility features, such as eye tracking, from the newest iPad operati...
Posted 02/16/2022
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Dating With SMA: Love Is Out There, But Finding It Takes Strength

Just thinking about dating is an absolute monster of a thought when spinal muscular atrophy (SMA)...
Posted 02/09/2022

Dating With SMA: Love Is Out There, But Finding It Takes Strength

Just thinking about dating is an absolute monster of a thought when spinal muscular atrophy (SMA)...
Posted 02/09/2022
read more >
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