Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News Videos All Resources
About mySMAteam
What is This Site Terms of Use Privacy policy
Powered By

SMA in the News

Pregnancy and Childbirth With SMA: My Experiences

Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022

Pregnancy and Childbirth With SMA: My Experiences

Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022
read more >

Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds

Spinraza (nusinersen) improves fine manual dexterity and gross motor skills in children with spin...
Posted 01/26/2022

Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds

Spinraza (nusinersen) improves fine manual dexterity and gross motor skills in children with spin...
Posted 01/26/2022
read more >

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022
read more >

Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds

Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead t...
Posted 01/18/2022

Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds

Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead t...
Posted 01/18/2022
read more >

What Makes a Good Doctor for People With SMA?

Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s especi...
Posted 01/13/2022

What Makes a Good Doctor for People With SMA?

Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s especi...
Posted 01/13/2022
read more >

Brothers With SMA Complete Their Doctorates Weeks Apart

Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses ...
Posted 01/11/2022

Brothers With SMA Complete Their Doctorates Weeks Apart

Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses ...
Posted 01/11/2022
read more >

Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some in...
Posted 01/06/2022

Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some in...
Posted 01/06/2022
read more >

Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care

In a recent webinar, four young adults discussed transitioning from pediatric to adult health car...
Posted 01/04/2022

Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care

In a recent webinar, four young adults discussed transitioning from pediatric to adult health car...
Posted 01/04/2022
read more >

Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA

A recent study found that a wearable cyborg limb can be used to help people with neuromuscular di...
Posted 12/30/2021

Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA

A recent study found that a wearable cyborg limb can be used to help people with neuromuscular di...
Posted 12/30/2021
read more >

Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA

A new study highlights the benefits of adaptive sports to improve the physical and psychological ...
Posted 12/29/2021

Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA

A new study highlights the benefits of adaptive sports to improve the physical and psychological ...
Posted 12/29/2021
read more >
SMA News

Become a Subscriber

Get the latest news about spinal muscular atrophy sent to your inbox.

Not now, thanks
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy policy

Thank you for subscribing!

Become a member to get even more: