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SMA in the News

Winter Safety Tips for People With SMA
Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021
Winter Safety Tips for People With SMA
Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021
The Challenges of Working With SMA
With a newly earned degree in speech pathology, I began my career as a school-based speech therap...
Posted 12/23/2021
The Challenges of Working With SMA
With a newly earned degree in speech pathology, I began my career as a school-based speech therap...
Posted 12/23/2021
Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab
Pharmaceutical company Scholar Rock is seeking participants for a clinical trial of apitegromab, ...
Posted 12/22/2021
Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab
Pharmaceutical company Scholar Rock is seeking participants for a clinical trial of apitegromab, ...
Posted 12/22/2021
Take the Pain and Make Art: An Interview With Will Stocker About His Film “Crippled”
Will Stocker is the producer and lead actor in “Crippled,” a film by Unicorn Propaganda. The crea...
Posted 12/21/2021
Take the Pain and Make Art: An Interview With Will Stocker About His Film “Crippled”
Will Stocker is the producer and lead actor in “Crippled,” a film by Unicorn Propaganda. The crea...
Posted 12/21/2021
Comments and Jokes About SMA: How I Handle It
Sometimes the words people choose can make a difference in the overall impact of a conversation. ...
Posted 12/16/2021
Comments and Jokes About SMA: How I Handle It
Sometimes the words people choose can make a difference in the overall impact of a conversation. ...
Posted 12/16/2021
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021
U.S. Airlines Are Mishandling More Wheelchairs as Air Travel Increases
Since the start of 2021, U.S. airlines have mishandled customers’ wheelchairs and mobility scoote...
Posted 12/14/2021
U.S. Airlines Are Mishandling More Wheelchairs as Air Travel Increases
Since the start of 2021, U.S. airlines have mishandled customers’ wheelchairs and mobility scoote...
Posted 12/14/2021
Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights
Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021
Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights
Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021
My Biggest Fear: Running Out of Time
Running out of time has been one of the most daunting and unparalleled fears in all of my existen...
Posted 12/08/2021
My Biggest Fear: Running Out of Time
Running out of time has been one of the most daunting and unparalleled fears in all of my existen...
Posted 12/08/2021
The Challenges of Motherhood With SMA
I was in college when I got diagnosed with spinal muscular atrophy (SMA) type 3. Learning that I ...
Posted 12/07/2021
The Challenges of Motherhood With SMA
I was in college when I got diagnosed with spinal muscular atrophy (SMA) type 3. Learning that I ...
Posted 12/07/2021
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