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SMA in the News

University Student With SMA Awarded for Disability Rights and Inclusion Work

Disability advocate Vincent Pinti worked to create a scholarship for University of Michigan stude...
Posted 12/02/2021

University Student With SMA Awarded for Disability Rights and Inclusion Work

Disability advocate Vincent Pinti worked to create a scholarship for University of Michigan stude...
Posted 12/02/2021
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Tips for Parenting Teenagers With SMA

My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021

Tips for Parenting Teenagers With SMA

My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021
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SMA Medication Zolgensma May Cause Liver Failure, Warns New Label Update

Zolgensma (onasemnogene abeparvovec-xioi), a treatment for children with spinal muscular atrophy ...
Posted 11/30/2021

SMA Medication Zolgensma May Cause Liver Failure, Warns New Label Update

Zolgensma (onasemnogene abeparvovec-xioi), a treatment for children with spinal muscular atrophy ...
Posted 11/30/2021
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‘Ordinary Joe’ Wins in My Eyes as a Viewer With SMA

The title character in “Ordinary Joe” and his on-screen spouse are raising a son diagnosed with ...
Posted 11/25/2021

‘Ordinary Joe’ Wins in My Eyes as a Viewer With SMA

The title character in “Ordinary Joe” and his on-screen spouse are raising a son diagnosed with ...
Posted 11/25/2021
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The Decision To Get a Scooter

I was diagnosed with spinal muscular atrophy (SMA) type 3 when I was 20 years old. Although walki...
Posted 11/24/2021

The Decision To Get a Scooter

I was diagnosed with spinal muscular atrophy (SMA) type 3 when I was 20 years old. Although walki...
Posted 11/24/2021
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Implanted Catheter May Ease Delivery of Spinraza for SMA, but Approach Comes With Risks

People with spinal muscular atrophy (SMA) often have spine deformities that make it difficult to ...
Posted 11/23/2021

Implanted Catheter May Ease Delivery of Spinraza for SMA, but Approach Comes With Risks

People with spinal muscular atrophy (SMA) often have spine deformities that make it difficult to ...
Posted 11/23/2021
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Nobel Peace Prize Winner Will Donate Money to SMA Treatment for Children

Nobel Peace Prize winner, Dmitry A. Muratov, plans to donate some of his prize money to support c...
Posted 11/18/2021

Nobel Peace Prize Winner Will Donate Money to SMA Treatment for Children

Nobel Peace Prize winner, Dmitry A. Muratov, plans to donate some of his prize money to support c...
Posted 11/18/2021
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Finding My Voice for Self-Advocacy

Growing up required me to take more initiative when it comes to my own life. Having spinal muscul...
Posted 11/17/2021

Finding My Voice for Self-Advocacy

Growing up required me to take more initiative when it comes to my own life. Having spinal muscul...
Posted 11/17/2021
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In Type 3 SMA, Breathing and Upper-Body Function Worsen After Walking Stops

A new study has found that once a child with spinal muscular atrophy (SMA) type 3 loses the abili...
Posted 11/16/2021

In Type 3 SMA, Breathing and Upper-Body Function Worsen After Walking Stops

A new study has found that once a child with spinal muscular atrophy (SMA) type 3 loses the abili...
Posted 11/16/2021
read more >

Psychologist With SMA Helps Clients Boost Their ‘Dateable Self-Esteem’

Dr. Danielle Sheypuk is a New York City-based licensed clinical psychologist, disability-rights a...
Posted 11/11/2021

Psychologist With SMA Helps Clients Boost Their ‘Dateable Self-Esteem’

Dr. Danielle Sheypuk is a New York City-based licensed clinical psychologist, disability-rights a...
Posted 11/11/2021
read more >
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