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Is Anyone Planning On Going To The Next Cure SMA Conference? It’s In CA From June 26-29. Scholarships Are Available From Cure SMA.
Thank you, I will ask them via email.
Sorry, I Have SBMA. Are There Any Medical Procedures That Can Stabilize The Progression Of The Disease?
Are We Close To Having A Medical Procedure To Stabilize The Progression Of The Disease?
What Kind Of Supplements Does Anyone Take To Help Maintain Muscle?
That is a great question!
What’s One Thing About SMA That People Rarely Discuss But Should?
That the disabled, even in the richest country in the world, are the most marginalized people, without a letter in 'their' alphabet. It's ridiculous that we can not get caregiving help unless we are… read more
Hello Im Here To Ask When To Notice Some Improvement After Taking Evrysdi My 6 Months Old Baby Started Like 3 Days Ago
Any Idea When Risdipalm Is Going To Be Available To Type 4 And Does Anyone Regret Taking In Past?
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Staying on track
I Asked This A Month Ago. My Grands Have Been Diagnosed With SMA. How Would It Manifest Itself In Their 73 Yr Old Grandmother
Genetics test
Do You Follow A Specific Diet To Help With SMA?
Eat little bit every day
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