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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"

By A mySMAteam Member

Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg

By A mySMAteam Member β€’ 4 answers

Is SMA The Cause Of My Tiredness? It Is Hard Work Doing Anything And Walking. It Would Make Sense That That Is The Reason For My Tiredness.

By A mySMAteam Member β€’ 6 answers

What's A Common Misconception About SMA?

By A mySMAteam Member β€’ 7 answers
248 questions

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? πŸŽƒ

A mySMAteam Member asked a question πŸ’­
San Francisco, CA
A mySMAteam Member

I don't think there is answer, but enjoy and work it off after the holidays.

5 days ago

I Asked This A Month Ago. My Grands Have Been Diagnosed With SMA. How Would It Manifest Itself In Their 73 Yr Old Grandmother

A mySMAteam Member asked a question πŸ’­
Baltimore, MD
A mySMAteam Member

Genetics test

October 22

Do You Follow A Specific Diet To Help With SMA?

A mySMAteam Member asked a question πŸ’­
San Francisco, CA
A mySMAteam Member

Eat little bit every day

October 1

With Type 4, When Do You Know To Give In To It And Stop Work, Or Is This A Daft Question?

A mySMAteam Member asked a question πŸ’­
Scotland, AR
A mySMAteam Member

@A mySMAteam Member Hang in there. The most important advice I wish I knew earlier is understand your local laws and programs for assisting individuals with disabilities. It really plays an… read more

October 2 (edited)

How Do I Receive An Answer To My Question? Is It Emailed To Me?

A mySMAteam Member asked a question πŸ’­
Baltimore, MD
A mySMAteam Member

My 2 grandchildren were recently diagnosed with SMA (21. & 19). The oldest had no symptoms. The youngest gets spinal shots. How would SMA manifest itself in me at 73 yrs old?!?

October 1

My Son Recently Had Breathing Tests At A Local Hospital, It Has Shown Some Mild Abnormalities, Also Some Diaphramatic Weakness.

A mySMAteam Member asked a question πŸ’­
Scotland, United Kingdom

Is this expected with SMA type 3. He has been referred to a respiratory neuromuscular consultant at a larger hospital.

My 2 Year Old Have SMA Type 2 And I Need To Know What The Best Diet Will Be For Her.She Don't Get Any Treatment .She Is Constantly Bloted

A mySMAteam Member asked a question πŸ’­
South africa gauteng

She is not crawling or walking.

Has Anyone Experienced Perenium Numbness After Spinal Fusion Surgery?

A mySMAteam Member asked a question πŸ’­
Canoga Park, CA

Which SMA Symptom Surprised You The Most?

A mySMAteam Member asked a question πŸ’­
San Francisco, CA
A mySMAteam Member

Definitely the fatigue, the twitches,falling, and anxiety I can actually cope with, to a point

October 8

I'm Curious What Others Experiences Are With Driving. I Live Near LA And Go To Work To LA All The Time, Curious If Others Are Able To Drive?

A mySMAteam Member asked a question πŸ’­
Los Angeles, CA
A mySMAteam Member

ah I see, do you drive with a modified car now? if so how's that going and what modifications you have?

August 24
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