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Questions & Answers

Get practical advice and insights from people who understand

Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About SMA?

By A mySMAteam Member β€’ 7 answers

Is There A Particular Diet And/or Food That Has Slowed Progression? E.g. The Keto Diet Has Been Used For Other Types Of Neuro Diseases.

By A mySMAteam Member

What SMA Symptoms Keep You Up At Night?

By A mySMAteam Member β€’ 3 answers

How Do I Find Actual Genetic Testing Not Just Carrier Testing And Does Medicare Cover It?

By A mySMAteam Member β€’ 1 answer
253 questions

Hello Im Here To Ask When To Notice Some Improvement After Taking Evrysdi My 6 Months Old Baby Started Like 3 Days Ago

A mySMAteam Member asked a question πŸ’­
Algeria
4 days ago
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Any Idea When Risdipalm Is Going To Be Available To Type 4 And Does Anyone Regret Taking In Past?

A mySMAteam Member asked a question πŸ’­
Scotland, AR
November 9
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? πŸŽƒ

A mySMAteam Member asked a question πŸ’­
San Francisco, CA
October 21
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A mySMAteam Member

Staying on track

4 days ago

I Asked This A Month Ago. My Grands Have Been Diagnosed With SMA. How Would It Manifest Itself In Their 73 Yr Old Grandmother

A mySMAteam Member asked a question πŸ’­
Baltimore, MD
October 12
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A mySMAteam Member

Genetics test

October 22

Do You Follow A Specific Diet To Help With SMA?

A mySMAteam Member asked a question πŸ’­
San Francisco, CA
September 23
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A mySMAteam Member

Eat little bit every day

October 1

With Type 4, When Do You Know To Give In To It And Stop Work, Or Is This A Daft Question?

A mySMAteam Member asked a question πŸ’­
Scotland, AR
September 15
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A mySMAteam Member

@A mySMAteam Member Hang in there. The most important advice I wish I knew earlier is understand your local laws and programs for assisting individuals with disabilities. It really plays an… read more

October 2 (edited)

How Do I Receive An Answer To My Question? Is It Emailed To Me?

A mySMAteam Member asked a question πŸ’­
Baltimore, MD
September 15
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A mySMAteam Member

My 2 grandchildren were recently diagnosed with SMA (21. & 19). The oldest had no symptoms. The youngest gets spinal shots. How would SMA manifest itself in me at 73 yrs old?!?

October 1

My Son Recently Had Breathing Tests At A Local Hospital, It Has Shown Some Mild Abnormalities, Also Some Diaphramatic Weakness.

A mySMAteam Member asked a question πŸ’­
Scotland, United Kingdom

Is this expected with SMA type 3. He has been referred to a respiratory neuromuscular consultant at a larger hospital.

August 26
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My 2 Year Old Have SMA Type 2 And I Need To Know What The Best Diet Will Be For Her.She Don't Get Any Treatment .She Is Constantly Bloted

A mySMAteam Member asked a question πŸ’­
South africa gauteng

She is not crawling or walking.

August 26
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Has Anyone Experienced Perenium Numbness After Spinal Fusion Surgery?

A mySMAteam Member asked a question πŸ’­
Canoga Park, CA
August 19
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