How Often Does Everyone See There Neurologist, Especially Type 3?
Hi, I see my neurologist about 3 times a year. Right before I get my Spinraza injection. Every 4 months. I hope this helps you. John
I’m type 3 and I see mine twice a year.
Enkrat na 4 mesece. Pa še to zaradi doziranja zdravila spinraza
I see my neurologist 2x in the clinic and 3x for my injection 😊
Besides examining me to see my level of strength, she writes a prescription for PT. I’m always trying different types of PT. I also get an upper limb module test to see if I’m stronger since taking treatments. She helped me start the Spinraza process then helped me switch to Evrysdi then back to Spinraza.
I Have Sma Type 3. Do Normal Things Is Hard For Me. I Live By Myself. Does Anyone How I Can Get A Full Time Aide Without The High Cost
Can A 23 Year Old Take The At Home Drug For SMA?
With Type 4, When Do You Know To Give In To It And Stop Work, Or Is This A Daft Question?