Connect with others who understand.

Sign up Log in
Resources
About mySMAteam
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Ataxia Telangiectasia (AT)

A mySMAteam Member asked a question 💭
Lyon, France

Hi, does someone in the team has an idea about ataxia telangiectasia. It’s a rare neuro degenerative disease and not curable for the moment. I would like to know if there are any studies or tests in course. I’m personally following a young bit from Vietnam since 7 years. He 14 now. When I first saw him he was running and enjoying. Today he’s bed ridden and needs assistance for everything. Thank you

December 6, 2021
View reactions
A mySMAteam Member

Thank you Lisa

December 9, 2021

Related content

View All

Can A 23 Year Old Take The At Home Drug For SMA?

A mySMAteam Member asked a question 💭
Madison, WI

Hey Everybody! How Often Do Y’all Go To PT? And What Are Your PT Routines Like?

A mySMAteam Member asked a question 💭
Fayetteville, NC

I Asked This A Month Ago. My Grands Have Been Diagnosed With SMA. How Would It Manifest Itself In Their 73 Yr Old Grandmother

A mySMAteam Member asked a question 💭
Baltimore, MD
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in