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Zolgensma For Adults
Hi everyone. I was wondering if sma adults should start a petition to FDA to make Zolgensma available for adults. The reasons they say we cannot do it: 1) insurance - as adults, most of us have jobs so we have some type of insurance coverage, and the fact the drug is given to kids if insurance does not cover by Novartis anyways is reason why, 2) cost - drug is 2.1 million but most of us on Spinraza or Evrysdi know these drugs cost 400000 a year, so it pays for itself after 10 years, 3)… read more
Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg
For Those Adults With SMA, How Old Are You And Which Type?
Zolgensma For Adults
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