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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Zolgensma For Adults

A mySMAteam Member asked a question 💭
California, MD

Hi everyone. I was wondering if sma adults should start a petition to FDA to make Zolgensma available for adults. The reasons they say we cannot do it: 1) insurance - as adults, most of us have jobs so we have some type of insurance coverage, and the fact the drug is given to kids if insurance does not cover by Novartis anyways is reason why, 2) cost - drug is 2.1 million but most of us on Spinraza or Evrysdi know these drugs cost 400000 a year, so it pays for itself after 10 years, 3)… read more

June 7
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