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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s Your Top Survival Tip For Managing SMA In The Summer Heat?

A mySMAteam Member asked a question 💭
San Francisco, CA
July 17, 2023
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A mySMAteam Member

I've tried many things but nothing close to working yet. It would be amazing to have the safe tech (along with a big enough market) to get products like these for golf carts and motorcycles for our chairs seats and backs. https://youtu.be/fY6kazBFWZ0 https://www.coolassseats.com/

September 12, 2023
A mySMAteam Member

A pool, any pool, best thing for us. Most now all have decent pool lifts, usually I'm the first not ever use. I'm pretty ada so see all the holes.

September 6, 2023
A mySMAteam Member

When it’s hot, I try to take it easy by relaxing in the shade or taking a dip in the pool but if it’s extremely hot, I stay in the air conditioning. The heat can really drain me so I try not to do too much.

July 19, 2023
A mySMAteam Member

Be still

July 17, 2023
A mySMAteam Member

Hello @A mySMAteam Member, I'm really sorry to hear about your loss. Losing your best friend, especially a service dog who meant so much to you, must be incredibly tough. He was there for you when you needed him; that bond is irreplaceable. It's unfortunate that some people complained about him, but don't let that overshadow his incredible impact on your life. Take all the time you need to grieve and remember the good times you shared. If there's anything I can do to support you, just let me know. ♥️

July 19, 2023

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