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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Feel People Misunderstand The Most About SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
February 17, 2022
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A mySMAteam Member

How tired you get doing nothing. You try, but it’s impossible to keep up with others that are not physically challenged. One activity a day will exhaust you.

February 17, 2022
A mySMAteam Member

What Sammy said! The effort it takes to do everyday things. So if I do something special for you, it took more effort than if an abled body person did it so be thankful! Lol

February 23, 2022
A mySMAteam Member

The toll that a degenerative disease can take. The grief, the loss, the effort that is required day to day to get things done. The mental load can be a lot.

February 23, 2022
A mySMAteam Member

I know what you mean I'm the same way

February 22, 2022

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