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SMA in the News

SMA Screening of Newborns Increasing Worldwide as Countries Weigh Benefits

Countries around the globe are increasingly beginning to screen newborns for spinal muscular atro...
Posted 10/20/2021

SMA Screening of Newborns Increasing Worldwide as Countries Weigh Benefits

Countries around the globe are increasingly beginning to screen newborns for spinal muscular atro...
Posted 10/20/2021
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Dr. Strober Offers Tips for Transitioning to Adult Care for SMA

Before transitioning from pediatric to adult care for spinal muscular atrophy (SMA), it’s importa...
Posted 10/19/2021

Dr. Strober Offers Tips for Transitioning to Adult Care for SMA

Before transitioning from pediatric to adult care for spinal muscular atrophy (SMA), it’s importa...
Posted 10/19/2021
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Study Finds Chewing Difficulties Common in SMA Types 2 and 3

A recent study analyzed whether people with type 2 and type 3 spinal muscular atrophy (SMA) had c...
Posted 10/14/2021

Study Finds Chewing Difficulties Common in SMA Types 2 and 3

A recent study analyzed whether people with type 2 and type 3 spinal muscular atrophy (SMA) had c...
Posted 10/14/2021
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Considering the Transition to Adult Care for SMA: A Q&A With Dr. Strober

Pediatric programs may offer easier access to multidisciplinary specialist care for young adults ...
Posted 10/12/2021

Considering the Transition to Adult Care for SMA: A Q&A With Dr. Strober

Pediatric programs may offer easier access to multidisciplinary specialist care for young adults ...
Posted 10/12/2021
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Independence Starts With Desire

One of the biggest challenges of living with spinal muscular atrophy (SMA) is the difficulty of b...
Posted 10/07/2021

Independence Starts With Desire

One of the biggest challenges of living with spinal muscular atrophy (SMA) is the difficulty of b...
Posted 10/07/2021
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New Trial Will Test Higher Dose of Nusinersen for People With Later-Onset SMA

A new clinical trial will study whether a higher dose of nusinersen will help people with spinal ...
Posted 10/05/2021

New Trial Will Test Higher Dose of Nusinersen for People With Later-Onset SMA

A new clinical trial will study whether a higher dose of nusinersen will help people with spinal ...
Posted 10/05/2021
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AbleGamers COO Raises $1M for Accessible Gaming Nonprofit in One Year

Steven Spohn, chief operating officer (COO) of AbleGamers, has raised more than $1 million for th...
Posted 09/30/2021

AbleGamers COO Raises $1M for Accessible Gaming Nonprofit in One Year

Steven Spohn, chief operating officer (COO) of AbleGamers, has raised more than $1 million for th...
Posted 09/30/2021
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Rare Case of SMA Caused by Non-5q Mutation

Most cases of spinal muscular atrophy (SMA) are caused by changes to part of a chromosome called ...
Posted 09/29/2021

Rare Case of SMA Caused by Non-5q Mutation

Most cases of spinal muscular atrophy (SMA) are caused by changes to part of a chromosome called ...
Posted 09/29/2021
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Cure SMA Rallies Public in Urging Congress To Expand Access to Assistive Technology

Assistive technology (AT) includes devices and services that help those with disabilities functio...
Posted 09/23/2021

Cure SMA Rallies Public in Urging Congress To Expand Access to Assistive Technology

Assistive technology (AT) includes devices and services that help those with disabilities functio...
Posted 09/23/2021
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The Vitality of Online Gaming With SMA

Online gaming may not be interesting to you. You may find the whole concept just plain boring. Bu...
Posted 09/22/2021

The Vitality of Online Gaming With SMA

Online gaming may not be interesting to you. You may find the whole concept just plain boring. Bu...
Posted 09/22/2021
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