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SMA in the News

Interview: Dr. Strober on Combination Therapy for Babies With SMA

Many parents of children with spinal muscular atrophy (SMA) have questions about combination ther...
Posted 09/21/2021

Interview: Dr. Strober on Combination Therapy for Babies With SMA

Many parents of children with spinal muscular atrophy (SMA) have questions about combination ther...
Posted 09/21/2021
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Study Looks at Economic Burden of Spinal Muscular Atrophy

Researchers conducted a study analyzing the financial impact of spinal muscular atrophy (SMA).The...
Posted 09/16/2021

Study Looks at Economic Burden of Spinal Muscular Atrophy

Researchers conducted a study analyzing the financial impact of spinal muscular atrophy (SMA).The...
Posted 09/16/2021
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Caregivers Sought for SMA Outcome Tool Validation Study

The University of Rochester Center for Health + Technology is seeking caregivers of children with...
Posted 09/15/2021

Caregivers Sought for SMA Outcome Tool Validation Study

The University of Rochester Center for Health + Technology is seeking caregivers of children with...
Posted 09/15/2021
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Review: ‘I Live a Life Like Yours’

“You look so good.” This statement may typically be thought of as a compliment, but in Jan Grue’s...
Posted 09/14/2021

Review: ‘I Live a Life Like Yours’

“You look so good.” This statement may typically be thought of as a compliment, but in Jan Grue’s...
Posted 09/14/2021
read more >

Making Friends and Overcoming Social Anxiety With SMA

I’m one of the few people in New Jersey to make it through high school and college with spinal mu...
Posted 09/09/2021

Making Friends and Overcoming Social Anxiety With SMA

I’m one of the few people in New Jersey to make it through high school and college with spinal mu...
Posted 09/09/2021
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Majority of U.S. Newborns Now Screened for SMA

Eighty-five percent of infants born in the United States are now screened for spinal muscular atr...
Posted 09/07/2021

Majority of U.S. Newborns Now Screened for SMA

Eighty-five percent of infants born in the United States are now screened for spinal muscular atr...
Posted 09/07/2021
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Treatment With Evrysdi After Zolgensma Shows Benefit for SMA Type 1

Researchers reviewed four cases in which children with spinal muscular atrophy (SMA) type 1 recei...
Posted 09/02/2021

Treatment With Evrysdi After Zolgensma Shows Benefit for SMA Type 1

Researchers reviewed four cases in which children with spinal muscular atrophy (SMA) type 1 recei...
Posted 09/02/2021
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Review: ‘Born for Business’ Is a Satisfying Step Closer to Inclusion

Peacock’s “Born for Business” docuseries is a step in the right direction insofar as presenting d...
Posted 09/01/2021

Review: ‘Born for Business’ Is a Satisfying Step Closer to Inclusion

Peacock’s “Born for Business” docuseries is a step in the right direction insofar as presenting d...
Posted 09/01/2021
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Cure SMA To Host College Panel Webinar Series

Whether their first day of college is around the corner or years away, people with spinal muscula...
Posted 08/31/2021

Cure SMA To Host College Panel Webinar Series

Whether their first day of college is around the corner or years away, people with spinal muscula...
Posted 08/31/2021
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Risdiplam Safe and Effective After 24 Months of Treatment in Babies With Type 1 SMA

In a recently published study, 41 infants with type 1 spinal muscular atrophy (SMA) were treated...
Posted 08/27/2021

Risdiplam Safe and Effective After 24 Months of Treatment in Babies With Type 1 SMA

In a recently published study, 41 infants with type 1 spinal muscular atrophy (SMA) were treated...
Posted 08/27/2021
read more >
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