Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News Videos All Resources
About mySMAteam
What is This Site Terms of Use Privacy policy
Powered By

Top 10 search results for "learning self advocacy at a young age my experiences" in Resources. To see all results and access other features, sign up for free.

Posts
Resources
Q&A
People

Finding My Voice for Self-Advocacy

Growing up required me to take more initiative when it comes to my own life. Having spinal muscul...
Posted 11/17/2021

Finding My Voice for Self-Advocacy

Growing up required me to take more initiative when it comes to my own life. Having spinal muscul...
Posted 11/17/2021
read more >

Learning Self-Advocacy at a Young Age: My Experiences

Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...

Learning Self-Advocacy at a Young Age: My Experiences

Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...
read article >

University Student With SMA Awarded for Disability Rights and Inclusion Work

Disability advocate Vincent Pinti worked to create a scholarship for University of Michigan stude...
Posted 12/02/2021

University Student With SMA Awarded for Disability Rights and Inclusion Work

Disability advocate Vincent Pinti worked to create a scholarship for University of Michigan stude...
Posted 12/02/2021
read more >

Symptoms of Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder that causes muscle weakness. SM...

Symptoms of Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder that causes muscle weakness. SM...
read article >

Types of Spinal Muscular Atrophy (SMA)

Spinal muscular atrophy (SMA) is an inherited neuromuscular disorder — meaning it affects the ner...

Types of Spinal Muscular Atrophy (SMA)

Spinal muscular atrophy (SMA) is an inherited neuromuscular disorder — meaning it affects the ner...
read article >

Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights

Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021

Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights

Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021
read more >

My Perspective: Life Can Still Be Fulfilling, No Matter What Level of Mobility I Have

What do you know now that you wish you knew when you were first diagnosed? It was a different wor...

My Perspective: Life Can Still Be Fulfilling, No Matter What Level of Mobility I Have

What do you know now that you wish you knew when you were first diagnosed? It was a different wor...
read article >

Your Child Is Newly Diagnosed With SMA. Now What?

Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...

Your Child Is Newly Diagnosed With SMA. Now What?

Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...
read article >

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022
read more >

What Is Spinal Muscular Atrophy (SMA)?

Spinal muscular atrophy (SMA) is a rare genetic disorder that causes progressive muscle weakness ...

What Is Spinal Muscular Atrophy (SMA)?

Spinal muscular atrophy (SMA) is a rare genetic disorder that causes progressive muscle weakness ...
read article >