“Independence can look different for people with SMA. … Having the proper support and care is really key.”

Dr. Sami Saba shared this important insight during mySMAteam’s latest Q&A session, during which members of the spinal muscular atrophy (SMA) community had a chance to learn more about managing and treating the condition.

Joined by Heather Lapidus Glassner, mySMAteam’s senior director of research, Dr. Saba answered questions about how to find an adult SMA specialist, which providers should be on your care team, how you can maintain your quality of life, and much more.

Check out the video for a few more topics Dr. Saba discussed during the Q&A session, including:

• How to approach dating and relationships when you have SMA
• What people with SMA should know about pregnancy and parenting
• Which symptoms adults with SMA might experience

Watch the video to see the entire 30 minute event, and register to be notified about upcoming Q&A sessions on mySMAteam.

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Speakers

Dr. Sami Saba is a neurologist and neuromuscular specialist who serves as director of the electrodiagnostic laboratory at Lenox Hill Hospital. He is also an assistant professor at the Donald and Barbara Zucker School of Medicine at Hofstra/Northwell. He graduated from Albert Einstein College of Medicine, completed his residency in neurology at New York University Langone Medical Center, and completed a fellowship in neuromuscular medicine at Montefiore Medical Center. He treats adults with spinal muscular atrophy, as well as many other neuromuscular conditions.

Heather Lapidus Glassner has over two decades of experience in market research. She has been with MyHealthTeams for six years, conducting social listening and quantitative survey research. Her focus is to raise awareness of life with chronic conditions, including SMA, leukemia, multiple sclerosis, lupus, Parkinson’s disease, COPD, Crohn’s disease and ulcerative colitis, migraine, and psoriasis. Heather's work has been presented at the Consortium of Multiple Sclerosis Centers and the International Congress on Systemic Lupus Erythematosus.

Disclaimer: The information, including but not limited to, information from presenters, text, graphics, images, and other material shared during this event is for informational purposes only. The information is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard during this event.