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I'll soon start taking risdiplam and I didn't get surgery (don't know if I still can get it).

So I was wondering : given that scoliosis in sma is due to muscle weakness, did anyone of you notice some stabilization of scoliosis while on the drug?

Im not a child,my doctor said in about 8years I will probably have to have surgery but it involves 3levels And it would be a major surgery so wants to hold off for awhile. Can you tell me why maybe

Does scoliosis of the spine reduce life expectancy?

Does scoliosis cause death

I have scoliosis, but I haven't had any breathing problems. I had hip surgery in 2020 and since that day I can't sit much because of the pain. This year I started to feel short of breath when sitting and lying on my right side only, sometimes sitting or lying in the same position I used to feel short of breath. I don't feel short of breath at all. What could be the cause of my shortness of breath? Do any of you have this experience? Most of my time I lie down because I can't sit up much… read more

I have scoliosis, I am 21 years old. And I have scoliosis since childhood. This year, I started to feel short of breath when sitting and sometimes when lying on the back. Does scoliosis cause death in cases of spinal muscular atrophy? I only use PIBAB while I sleep.

My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!