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What Is One Skill You'd Love To Possess Instantly And The Reason Behind Your Desire?
If I could instantly acquire one skill, it would be the ability to speak multiple languages fluently. My desire is because I've always been fascinated by different cultures and connecting with people… read more
What's The Worst Age For SMA1
It can be heartbreaking to remember what was as we deal with what is and the fear of what the future might hold. Love support and hope is sometimes all we have. I’m comforted with knowing I did the… read more
My 2 Year Old Have SMA Type 2 And I Need To Know What The Best Diet Will Be For Her.She Don't Get Any Treatment .She Is Constantly Bloted
How Can I Loose Weight?
I have SMA type 3 and I feel like i’ve gain some weight and don’t know how to loose it. I heard Fasting can just make things worse.
Limit your portions. No one should eat until their stuff. And do lite exercises.
Hi, My SMA Type 3 Son Has A New Symptom, Swelling And Pain On Wrist, Is This Because Of His Condition And Can Anything Be Done To Help.
66yo male smaIII, I never experienced swelling because if SMA. I do now use compression socks as my feet swell from sitting full time.
Gene Therapy
I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?
Is There A Particular Diet And/or Food That Has Slowed Progression? E.g. The Keto Diet Has Been Used For Other Types Of Neuro Diseases.
I Am On Cpap Do I Stay Asleep And How Do I Go Back To Sleep If I Wake Up?
I take a mild sleeping pill so wake less needing a turn usually 5x but with sleeping aide maybe 1 time. And I can return to sleep after my sleeping side is changed.
What Points Should Be Paid Attention To For Back And Spine Care Of Type 1 Patients. For Example, For Independent Sitting, Hugging, Sleeping
Power Wheelchair Recommendations
So...part of me knows this is a ridiculous question, but I am hoping that maybe there have been changes I am unaware of. It is that dreaded time when I have to begin to apply for a new wheelchair.
It use to be I would look forward to the process. Use to be every new model of wheelchair would be better, drive further, be faster, overall better. That has not been the case however the last twenty years. The wheelchair I own twenty years ago was in every way better than the one ten years ago… read more
