Connect with others who understand.

Sign up Log in
Resources
About mySMAteam
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone With Type 1 Sma Child Who Got Zolgensma?

A mySMAteam Member asked a question 💭
Tanzania
April 27, 2023
Be the first to like/hug
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply, “How quickly can my child get this?” Time is so important. Many children that are getting zolgensma at birth are hitting typical milestones with sitting, standing, walking.

April 29, 2023

Related content

View All

I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?

A mySMAteam Member asked a question 💭
Stevens Point, WI

Can A 23 Year Old Take The At Home Drug For SMA?

A mySMAteam Member asked a question 💭
Madison, WI

Is Someone With Sma Type 2 Did Scoliosis Surgery?

A mySMAteam Member asked a question 💭
Xanten, DE
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in