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What’s One Thing You Wish People Who Aren’t Living With SMA Could Understand?
Honestly,, I wish people would realize that y'all have problems with muscles and such NOT THAT YOU DON'T HAVE FEELINGS OR A BRAIN THAT WORKS. I wish doctors and nurses would see you the same as everyone else and realize that just because you may be confined to a wheelchair and don't walk at all,,it doesn't make it any easier to amputate the leg's
Why it takes me so long to accomplish simple tasks. Why I move so slow.
I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.
I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?
Name The One Thing You Find Most Challenging About SMA.
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