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What Advice Do You Have For Someone Newly Diagnosed With SMA?
Make friends with people who has had it on places like this, because we most likely know what you are going through!
Try to find Drs. In your area that understand the problem at your level.
great advice, @A mySMAteam Member! 🙂
Not quite the right person to answer that right now. I'm still trying to wrap all of my head around it. Only 3 months since diagnosis.
well said, @A mySMAteam Member
I Really Am Not Sure If I Have A Dx Of Sma. I Was Recently Reviewed At John's Hopkins University For Spine And Neck Surgery To Only Find Out
Hi,my Son(14) Has SMA-LED. He Is Having Achilles Tendon Lengthening Surgery For Toe Walking. Anyone Go Thru This Surgery? Was It Successful?
Im Am Moving And Was Wondering If There Is Anyone That Knows A Dr. In North West Arkansas?
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