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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Gene Therapy

A mySMAteam Member asked a question πŸ’­

I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?

September 10, 2020
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A mySMAteam Member

I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her crib railing. You can follow her on Everly's Hope on Facebook for more updates.

November 9, 2020
A mySMAteam Member

Hello, I was wondering because my daughter received zolgensma and was curious how a child responded after the first 3 months.

October 17, 2020
A mySMAteam Member

Here in the state of Arkansas I know of a little one who recently received Zolgenzma and insurance covered the injection. The child is now also receiving Spinraza.

October 17, 2020
A mySMAteam Member

No I sure do not. But I have heard it works. It costs $2.1 million dollars. Prayers are with you πŸ™

September 14, 2020

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