Connect with others who understand.

Sign up Log in
Resources
About mySMAteam
Powered By
SMA
NEWS

Finding Work When You Have SMA

Written by Bryce Parks
Posted on October 21, 2021

Finding work opportunities and landing a job when you have spinal muscular atrophy (SMA) can be tricky in any field. Utilizing a few different approaches, I was able to get a number of opportunities before I was even out of college.

Think Outside the Box

When it was time to look for work, I felt pretty intimidated. Right from the beginning, I felt a disadvantage in the hunt for a job because of my physical limitations. Of course, the Equal Employment Opportunity Act exists — but it doesn’t make such a difference unless there is a legitimate legal issue.

“You didn’t get the job because you lack the qualifications” or something similar is a potential excuse for employers. I noticed that immediately when looking for a job at a local grocery store during high school. Most of the positions required physical labor, and there wasn’t much room for cooperation with wheelchair-bound individuals. At the end of the day, I knew that I needed to think of more clever ways to get working.

Connections Are Welcome

I’m an introvert at heart, but I know the importance of being social in a professional setting. In the filmmaking industry, networking is one of the most important pieces of the puzzle. I always keep my windows open for new friends, in the event that they could possibly become future connections for work.

The people I’ve connected with and friends that I made were always in the field in which I wanted to work. Surrounding myself with like-minded people helped me get my first commission editing for a YouTube channel back in 2014. Recently, my production team ended up filming a music video for a friend of a friend and now we have future projects coming.

Remote Work Is a Gift

Remote work is the easiest solution for anyone who does not mind being at home on a regular basis. The tough part about finding those opportunities is that they are popular and usually easy positions to fill. I struggled with finding remote positions until I updated my resume and found my way into my first remote position through a mutual connection.

For others, I would highly recommend taking the extra step of reaching out to family and friends about job connections. There may not be an official job opening, but they could have useful advice in securing a position or finding a contact to help you negotiate some of the details. If you are creative, commissions are another way to get new connections. I started out taking free commissions before I ended up being offered paid work — and most commissions in the creative industry are entirely remote.

Keep an Updated Online Presence

I downloaded every well-known job-seeking and networking app I could find. Keeping up-to-date with LinkedIn, Indeed, and ZipRecruiter makes a huge shift in the job-hunting process overall. It is absolutely the most exhausting part of the process, but also the most useful. Taking the time to create accurate profiles with engaging biographies and descriptions is the best way to go.

Employers — at least in the filmmaking industry — seem to be fans of profiles with some personality. I handled my profile description with a combination of professionalism and personality. Of course, I leaned more toward the professional side, but I realize people don’t want to hire robots either.

Take Chances

Being bold was a big step on my work adventure. Sometimes I feel a bit nervous when putting myself out into the open with interviews and professional settings. I know that the worst-case scenario is a rejection from the employer. Trying again until everything falls into place is sometimes all that is left to do. Persistence is a huge part of the process, and it is the reason that I got to where I am today.

Columnists on mySMAteam discuss SMA from a specific point of view. Columnists' articles don’t reflect the opinions of mySMAteam staff, medical experts, partners, advertisers, or sponsors. Content on mySMAteam isn't intended as a substitute for professional medical advice, diagnosis, or treatment.

Posted on October 21, 2021
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy
Bryce Parks has SMA type 2. He hopes to make a difference to people through a variety of creative forms. Learn more about him here.

Related Articles

This is a short guided meditation by Dr. Christiane Wolf on self-kindness, which gives you more s...

Self-Kindness When Struggling: 6-Minute Guided Meditation

This is a short guided meditation by Dr. Christiane Wolf on self-kindness, which gives you more s...
Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...

Learning Self-Advocacy at a Young Age: My Experiences

Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...
People in online gaming communities have a wide range of personalities, outlooks, and behaviors —...

Gaming With SMA: Beware of Trolls and Hackers

People in online gaming communities have a wide range of personalities, outlooks, and behaviors —...
Becoming a better gamer can enhance your enjoyment and expand your gaming opportunities. Getting ...

Gaming With SMA: Leveling Up Your Gaming Skills

Becoming a better gamer can enhance your enjoyment and expand your gaming opportunities. Getting ...
When you first get started with online gaming, finding friends can feel virtually impossible with...

Gaming With SMA: Finding Friends in Online Gaming

When you first get started with online gaming, finding friends can feel virtually impossible with...
If you’re just starting out as a gamer, you’re in for endless hours of fun. In the modern era of ...

Gaming With SMA: Choosing Your First Game

If you’re just starting out as a gamer, you’re in for endless hours of fun. In the modern era of ...

Recent Articles

Spinal muscular atrophy (SMA) is a rare genetic disorder that causes progressive muscle weakness ...

What Is Spinal Muscular Atrophy (SMA)?

Spinal muscular atrophy (SMA) is a rare genetic disorder that causes progressive muscle weakness ...
Until recently, treatments for spinal muscular atrophy (SMA) could manage only symptoms. Doctors ...

Spinal Muscular Atrophy Treatment and Therapy Options

Until recently, treatments for spinal muscular atrophy (SMA) could manage only symptoms. Doctors ...
Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder that causes muscle weakness. SM...

Symptoms of Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder that causes muscle weakness. SM...
Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder characterized by muscle weaknes...

Causes of Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder characterized by muscle weaknes...
Spinal muscular atrophy (SMA), a genetic neuromuscular disorder that leads to muscle weakness, is...

Scoliosis in Spinal Muscular Atrophy

Spinal muscular atrophy (SMA), a genetic neuromuscular disorder that leads to muscle weakness, is...
Here are four ways to save money on medications.

4 Ways To Reduce the Cost of Medication (VIDEO)

Here are four ways to save money on medications.
SMA News

Thank you for subscribing!

Become a member to get even more: