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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"

By A mySMAteam Member

What's A Common Misconception About SMA?

By A mySMAteam Member 7 answers

Hi SMA Family, Have You Heard About The Higher Dosage Of Spinraza? I Believe The Higher Dosage Is Only For Adults. It Went From 12mg To 26mg

By A mySMAteam Member 4 answers

How Does The Cold Affect Your SMA?

By A mySMAteam Member 9 answers
261 questions

Shortness Of Breath At Times

A mySMAteam Member asked a question 💭
Syria, VA

I have scoliosis, but I haven't had any breathing problems. I had hip surgery in 2020 and since that day I can't sit much because of the pain. This year I started to feel short of breath when sitting and lying on my right side only, sometimes sitting or lying in the same position I used to feel short of breath. I don't feel short of breath at all. What could be the cause of my shortness of breath? Do any of you have this experience? Most of my time I lie down because I can't sit up much… read more

A mySMAteam Member

It scares me that I did not feel shortness of breath before the surgery. Why did shortness of breath appear until after the surgery?

August 1, 2023

This Will Be Multiple Questions Answers Would Be Appreciated.

A mySMAteam Member asked a question 💭
East Berlin, PA

1 has anyone have any experience with toilet lifts good or bad?
2 what type of vehicle do you drive if you can?

A mySMAteam Member

Ive got my toilet at 23 in now and its getting hard to get up from. That nautilus looks cool.

July 7, 2023

How We Can Help The Old Generation With New Tribology?

A mySMAteam Member asked a question 💭
Lanham, MD

What's Up With You Gurlllll? How Are You Feeling Today?!

A mySMAteam Member asked a question 💭
Cleveland, OH

Shortness Of Breath

A mySMAteam Member asked a question 💭
Syria, VA

I have scoliosis, I am 21 years old. And I have scoliosis since childhood. This year, I started to feel short of breath when sitting and sometimes when lying on the back. Does scoliosis cause death in cases of spinal muscular atrophy? I only use PIBAB while I sleep.

A mySMAteam Member

Yes

June 28, 2023

Type 3B And 4 Transition From Walking To Wheelchair

A mySMAteam Member asked a question 💭
Lincoln, NE

Can you share a bit about how the transition went for you over time? For example, I have difficulty standing from a seated position, but will I continue to be able to stand? I'm thinking about what sort of transfer I might be capable of long-term. Have you maintained arm strength? It not, what limitations have you encountered?

A mySMAteam Member

That will be needed down the line but for now I'm able to walk short distances and manage self-care. I'm trying to get a sense for the sequence of events in the future.

July 1, 2023

I Have Scoliosis For Many Years Now. At Which Point Should I Take A Surgery? I Don’t Have Breathing Issues. Only Having The Curvature

A mySMAteam Member asked a question 💭
Sri Lanka

What's The Worst Age For SMA1

A mySMAteam Member asked a question 💭
Roodepoort, ZA
A mySMAteam Member

It can be heartbreaking to remember what was as we deal with what is and the fear of what the future might hold. Love support and hope is sometimes all we have. I’m comforted with knowing I did the… read more

September 13, 2023

What Does A Typical Day Look Like For You Living With SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Whoa! 80 years - that is fantastic. I'm 54 and recently diagnosed type 3B. I did genetic testing through my neurologist.

June 24, 2023

Does Scoliosis Of The Spine Reduce Life Expectancy?

A mySMAteam Member asked a question 💭
Syria, VA

Does scoliosis of the spine reduce life expectancy?

A mySMAteam Member

Yes and no It desp

September 24, 2023
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