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Why Here Has SMA-LED
hi i am Esther Geertsma from the netherlands and i and my mother and grandfather we had al 3 SMA-LED i look for people of the same and call with you
Hi Esther, I do!
I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?
Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more
What's One Natural Remedy That's Helped In Managing Your SMA?
I keep my self busy with my dog. It help me in a lot way. We got outside he listen to me. When I tell him to stop. He will check on me.
Is There Another Big Reliable Wheelchair Supplier, Service And Repair Company Serving Maryland Other Then NuMotion?
Wheelchairs batteries just about completely dead. Put in for new batteries like a month ago. Are sitting in NuMotions storage somewhere. Earliest can come to install...September 1st. Tell them is emergency, batteries critical...spent entire day stuck at a table because batteries dead on Tuesday. Sorry...no one can come out until September 1st. What????😡
So, what is going on with NuMotion? I put in for replacement hospital bed remote in early July...they sent wrong remote...still not send right… read more
I don’t know any one from your place. I get my from Richland WA. I will help you out.O.K. That is what friend are for to help other in need.
Does Anyone Know Someone Willing To Sew Custom Wheelchair Seat Cover? Willing To Pay.
I am having a very hard time trying to find anyone capable or willing to sew a custom wheelchair seat cover for my wheelchair. Looking for someone who can make a cover similar to this
https://www.instructables.com/Wheelchair-Seat-C...
With a few minor changes like a detachable bag
My mother use to sew my covers before her passing. I made my last two seat covers including the one pictured, but each one took me nearly two years to sew as I can't operate a descent sewing machine and had to… read more
I found latino upholstery shops, they have a kind heart.
What Day Is It?
I have noticed a lot of people that I young even. When they are in their 70 or 80 I call them young people they most are wiling to help you out in the store. Or young people I alway say thank you.
What Is The Life Expectancy For SMA Type 1?
My friend told me I am old than the planet Pluto. That was funny 🤣🤣🤣🤣🤣
What Is One Skill You'd Love To Possess Instantly And The Reason Behind Your Desire?
If I could instantly acquire one skill, it would be the ability to speak multiple languages fluently. My desire is because I've always been fascinated by different cultures and connecting with people… read more
What’s Your Top Survival Tip For Managing SMA In The Summer Heat?
I've tried many things but nothing close to working yet. It would be amazing to have the safe tech (along with a big enough market) to get products like these for golf carts and motorcycles for our… read more
I Have SMA Type 4 What Do I Tell My Doctors?
I always share my SMA diagnosis with my doctors. I usually have to explain what it is and how I’m affected by it. I believe it’s important for them to know everything about me in order to understand… read more
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