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Dating Delema
How do you handle telling someone that you can't take them to where they want to go on a date because the place they want to go is not really wheelchair accessible..even though the website says it is?
So, the lovely person I have been dating really wants me to take her out to a Halloween theme park for her birthday. Asside from the billion of complications of trying to arrange a ride there, pick her up, arrange for my attendant to put me to bed at night and the steep cost of tickets more than… read more
There are actually quite a few more accessible places than people realize,,,I know I didn't until I started dating my husband. There's even accessible water parks,,,100% accessible. Just go for… read more
How Can I Loose Weight?
I have SMA type 3 and I feel like i’ve gain some weight and don’t know how to loose it. I heard Fasting can just make things worse.
Limit your portions. No one should eat until their stuff. And do lite exercises.
Any Parents Of Kids Who Have Received The Zoolgensma Treatment?
Hi , Is There A More Info On The New Drug Development Called Apitegromab – Scholar Rock? I Understood This Drug Is In Phase 3 . Thank You
I want to lose weight, SMA type 2
Any Tips To Make A Toilet Seat More Comfortable?
We use a stand-alone toilet and Hoyer Lift to get my adult son onto it. Long sitting time takes a lot of energy,
Thanks Fred! Will hunt down some plastic options to try.
What Is The Average Life Expectancy For People Who Have Sma Type 2?
My first neurosurgeon told me an average adult would be around 47 but that was depending on different factors
What SMA Symptom Do You Have That You Didn’t Expect?
Please understand I'm not bitter, just frustrated. Truth be told, I'm grateful that God has been very good to me. I am now 72 years old. Doctors told my mom I be lucky to be 12 or 14.😁😁😁😁😁
Just To Tell We Are Very Normal People. With Kind Heart
Everybody in this group always have a Beautiful heart. I would like to apology everybody. Sorry I have not get to you sooner. I also have seizures to. I do not understand why. Do everybody understand… read more
I Need An Assistive Devices/equipments For Control My Neck Movement, Please Suggest Some For Me
I have type three and have noticed neck weakness too so I tried neck pillows and supports bur found this on Amazon https://www.amazon.com/dp/B07XKJVQ3W?psc=1&...
you can shape it any way you want… read more
I Would Like To Give Everybody’s A Hug. Remember We Are Great People’s With Love In Are HEART.
My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.
He has advanced atrophy of his right calf muscle and the… read more
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