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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

I Will Be Speaking With A Representative Concerning The Challenges Individuals With Disabilities Face Concerning Attendant Care 12-16-2024

By A mySMAteam Member 1 answer

Earning Money While On Disability

By A mySMAteam Member 1 answer

I Have Sma Type 3. Do Normal Things Is Hard For Me. I Live By Myself. Does Anyone How I Can Get A Full Time Aide Without The High Cost

By A mySMAteam Member 5 answers

Is There A Particular Diet And/or Food That Has Slowed Progression? E.g. The Keto Diet Has Been Used For Other Types Of Neuro Diseases.

By A mySMAteam Member
261 questions

What SMA Symptoms Keep You Up At Night?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Thanks for making note of the Evrysdi, causing the gassiness. I spoke with my neurologist about it, and he said it was more likely the Ozempic then it was the ever see but I’ve been on the Ozempic… read more

January 18

How Many People Are With SMA LED Here?

A mySMAteam Member asked a question 💭
Nicosia Cyprus
A mySMAteam Member

I have it! Looking to connect with others with this type!

7 days ago

What's On Your Holiday Wish List That Could Improve Your Life With SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Friends , family and attendants to all be healthy. I am in constant fear of someone falling ill or current health conditions causing greater havoc. Sadly, that is not something can buy.

December 23, 2023

What Aspects Of SMA Are You Grateful For And Worried About Lately?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Stay positive! Remember, one day at a time!!

December 9, 2023

هل يوجد علاج واعد S M A LED 2

A mySMAteam Member asked a question 💭
Adak, AK

Can Adult Be Treated With Zolgensma?

A mySMAteam Member asked a question 💭
Malaysia

I Would Like Wish Everybody In This Group Happy Halloween. Also Be Safe 🥇🥇🥇🥇🥇🥇🥇🥇🥇

A mySMAteam Member asked a question 💭
WallaWalla,WA
A mySMAteam Member

I have able bodied wife who gets me, my sma, that is so rare. I find I'm only totally comfortable with others if they also face physical challenges but finding a group of them is even more rare.

February 5

I Noticed Everyone With SMA Is Pretty. Pretty Lives Matter Most

A mySMAteam Member asked a question 💭
Kansas City, MO

65yo male smaiii

A mySMAteam Member

Inside and out!❤️

February 6

When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?

A mySMAteam Member asked a question 💭
Syria, VA

How Do You Cope With Seasonal Changes And SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

For myself as soon as it gets below 65, I’m cold. I am from upstate New York so 7 months out of the year I’m generally cold. Most of the time I’m freezing you would say. So are use hand warmers… read more

November 11, 2023
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