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What Obstacles From SMA Have You Overcome?
I have lived an ordinary life! School,job,marriage,children,grandchildren. I have been very blessed.
How Is Your Relationship With Your SMA Doctors (or Other Health Care Providers)?
Would you change anything about it?
I have been with the same time Specialist for over (12) years.
So, that's gotta say something.
What's The Most Useful Advice You Have Received About SMA?
Amen
What Are You Really Proud Of?
I'm proud that I continue to advocate for myself and that I haven't dropped out of collegeπ
Name The Biggest Physical Challenge For You?
Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!
What's The Best And Worst SMA Advice You Have Received?
Just be you fight
What Advice Would You Give About Working With SMA Doctors And Care Providers?
I would do your own research. There is so much information online that can help you make decisions with your doctors and health care providers.
SMA can be tricky in that it is very different from⦠read more
Clinical Trials
Can someone of this group tell me something about myostatin inhibitors for people with SMA?
What Are You Most Excited For In The New Year?
The opportunity to learn and grow and fail all over again π
Do You Ever Feel Misunderstood With SMA? If So, How?
I have been called lazy by a family member who compared me to my younger self. When I told her that I was trying a new therapy she said βIβm glad you are finally doing something to help yourself.β Iβ¦ read more
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