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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About SMA?

By A mySMAteam Member 7 answers

Is There A Particular Diet And/or Food That Has Slowed Progression? E.g. The Keto Diet Has Been Used For Other Types Of Neuro Diseases.

By A mySMAteam Member

Earning Money While On Disability

By A mySMAteam Member 1 answer

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"

By A mySMAteam Member
262 questions

Does Anyone Have Any Experience Collecting Social Security Disability Once Unable To Work?

A mySMAteam Member asked a question 💭
Middletown, DE

I've come to the point in my life where after 22 years of being able to hold down a very dependable and fulfilling job is no longer possible. This is on many levels very difficult, especially mentally.

I am struggling with trying to figure out how to get approved for Social Security disability. It's hard enough just getting short-term disability approved through my company, it's amazing how little so-called experts understand about the condition and have trouble understanding why it's… read more

A mySMAteam Member

So...not going to like this....but the key is documentation...lots of it. Every slip of medical documentation can find from the last ten years. Also, keep in mind...you are only considered disabled… read more

February 14

What Advice Do You Have For Others About Managing Fatigue?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

I'm always exhausted seems like anymore

March 12, 2022

How Has SMA Changed Your Quality Of Life?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

You are NEVER a bad issue in someone's life by having a disability. If a problem does evolve, it's not your problem, it's theirs. You are never alone, I see mention of God. He will never forsake you… read more

March 14, 2022 (edited)

If You Could Make One SMA Symptom Disappear With The Wave Of A Magic Wand, Which Would It Be?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Arm weakness, so I could go back to work!

March 28, 2022

How Do I Edit My Story?

A mySMAteam Member asked a question 💭
San Jose, CA
A mySMAteam Member

Great question!

1. First, select the menu icon in the upper right corner of the site, then under My Profile, select 'my story.'
2. Once you've done that, you'll be on the 'my story' page. You can… read more

March 1, 2022

What Is Your Hobby?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

I have tons of hobbies. I am an artist, so currently I am preparing my artwork for the June 4th show at Art in the Park in Westminster Maryland. i am also a novice inventor. i just started with 3D… read more

May 18, 2022

What Unexpected Positives Have Come From Your Experience With SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Having SMA has taught me how strong I really am. It has also shown me that most people are kind. I found this out when total strangers rushed to help me up whenever I fell down in the street. The… read more

February 25, 2022

What Do You Feel People Misunderstand The Most About SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

What Sammy said! The effort it takes to do everyday things. So if I do something special for you, it took more effort than if an abled body person did it so be thankful! Lol

February 23, 2022

What Are Your Best Tips For Dating With SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

I would say that my best advice would be--BE YOURSELF . Don't change how you are to try to make your date more comfortable with your SMA
THE RIGHT PERSON WON'T EVEN NOTICE THE SMA. THEY'LL SEE… read more

April 10, 2022

What Tools Do You Use To Manage SMA?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

I’m not sure if I understand the question. But the aids I use are: Walker, wheelchair, leg lifter, strap to hold legs together and especially the walls so I don’t lose my balance and fall.

February 10, 2022
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