Quick Links
Resources
About mySMAteam
Powered By
What Phrase Or Mantra — Such As “This Too Shall Pass” — Do You Tell Yourself When Things Feel Tough?
Somebody else probably has it worse than you!
Tell Me Your Favorite Movie By Quoting A Line From It.
My favorite movie quote is, 'We are the music-makers, and we are the dreamers of dreams."
We are not sick men of Asia
What Do You Wish Your Doctor And You Had More Time To Discuss?
Real treatment options to keep the level of mobility I have. I am in a medically challenged area.
Who Or What Source Of Information On SMA Has Been Most Helpful To You?
Just a bit of online research and trying to put into action. Flint rehab has some great info on a lot of areas of spinal cord damage.
What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
So cool, @A mySMAteam Member! 😁
Who In Your Life Best Understands How SMA Impacts You, And How Do They Support You?
My best friend Judy, any way she can!
Has Anyone Tried Electrical Stimulation? (E Stim)
If you have I’m looking to know what settings you used on the device.
Yes I love it! I bought a device so I can do it at home. It helps with a lot with the cramping I get in my legs.
As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?
I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more
Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more
What Three Items Are Most Indispensable To You, And Why?
My walker and lifting recliner make independent life at home possible and my scooter for outdoors.
How Does SMA Impact You Emotionally?
I have good days and bad. Thankfully I don't have too many bad days but I have to be really careful not to get stuck when I'm feeling down, I'll give myself a day or two, if I need, to feel bad but… read more
Sign up for free!
Continue with Facebook
Sign up with your email
