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Which Supplements Or Vitamins Do You Take, And Why?
Have you noticed any differences when taking them or missing a dose?
I take a High Potency Vitamin D for My Immune system and I take Calcium for My Bones. I also take a Good Multivitamin. My Mom suggested taking Vitamins when I was in My early 20's and I've been taking… read more
Dealing With Government Regulations On Attendant Care
I am still entangled in the bureaucratic quagmire of my attendant care program. Long story short, around the beginning of the Pandemic, I lost a reliable attendant and i have been in a nightmare ever since then. I can't afford all the attendant care i need privately, so had no choice but to sign up for a state waiver program that has all kinds of ridiculous rules and regulations. The state program barely pays minimum wage, they dont cover gas or transportation, and they only cover a minimal… read more
15 years ago I looked at how I would obtain caregivers. I would need to spin down my meager assets to less than 2k. Smart ones move to California where state actually cares. All options in US… read more
Do You Enjoy Videos Of Hikes Or Nature Walks? Do You Have Any Favorites You’d Like To Share?
How Do You Decrease Your Anxiety? What Tips Would You Share?
Sorry...i misposted a comment here i meant for my own update. I was looking for tips for my own anxiety. Right now i have no tips to give.
What Does Independence Mean To You?
to me, independance means having autonomy and control over my choices. I don't necessarily mind that there are things I can't physically do on my own, I just view independence as being able to certain… read more
Have You Experienced True Love, Requited Or Otherwise? How Did It Turn Out?
Yes I have experienced true love. I had a child with one of my loves 26 years ago. Last sept I married my love. I am lucky to have experienced love more than once.
What Music Are You Listening To Right Now? Drop A Link.
Christian TheHouseFM
What Advice Would You Offer Someone Shopping For A New Seat Cushion?
I agree with Aaron get a seating company that works with you and helps you find the right seat cushion it definitely makes a difference if you have the right seat!!
Have You Tried Botox To Treat Muscle Stiffness? If So, How Was Your Experience? If Not, Would You Consider It?
I would definitely talk to your doctor about this, as I've heard that Botox is a big NO for those of us with SMA. However, I have tried acupuncture and that did help a little bit.
What Advice Would You Give Someone Looking To Hire A Caregiver?
Lexi, I completely agree!! I am currently struggling with a caregiver who became friends and is not treating things like the job she was hired to do. It’s hard in our situation not to become friends… read more
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