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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For SMA?

By A mySMAteam Member 6 answers

I Have Sma Type 3. Do Normal Things Is Hard For Me. I Live By Myself. Does Anyone How I Can Get A Full Time Aide Without The High Cost

By A mySMAteam Member 5 answers

I Asked This A Month Ago. My Grands Have Been Diagnosed With SMA. How Would It Manifest Itself In Their 73 Yr Old Grandmother

By A mySMAteam Member 12 answers

What Is Popping Of Joints As I Move Body? How To Fix It?

By A mySMAteam Member
262 questions

What Are Some Goals You Set For Yourself Today? This Week?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Today my goal was to make it through a long day of doctor appointments. This week my goal is to do more things that bring me joy! I’ve felt my seasonal depression creeping up and I’m working to combat… read more

October 18, 2022

How Does The Changing Of The Season Affect Your Body And Motivation?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

My body feels stiff and weak in the cold. I live where it snows all winter so that is an added layer of trying to bundle for freezing temps while still being able to move my body! Lots of blankets… read more

October 12, 2022

What Is Your Best Tip For Traveling?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

I prepare for vacation trips in the same way the military prepares for a hostile invasion on enemy shores. To be fair, I no longer travel much and have never traveled by plane, but when I was much… read more

October 4, 2022

How Do You Manage Caregivers?

A mySMAteam Member asked a question 💭
Calgary, AB

I’m currently struggling with hired caregivers who’ve become too comfortable after years of working with me and have began to complete less and less without my supervision and reminders. How do I remind them how vital they are to my days?

A mySMAteam Member

I moved from US to Colombia S. America so I could afford caregivers. NY advice get out of US, my caregivers are kind, full time and $12 a day.

October 17, 2023

Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???

A mySMAteam Member asked a question 💭
Finksburg, MD

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more

September 30, 2022

What's One Thing That Can Instantly Make Your Day Better?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

You ask what is one thing that can make your day better. First is waking up and believing in yourself! Staying positive and surrounding yourself around positive people and people who love you… read more

August 21, 2023

How Do You Ask For Help From Family Or Friends?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

My experience is that everyone has a limit of how much help they are willing to provide...and no matter how hard you might try...your needs are likely to extend beyond that of which even family are… read more

September 20, 2022

What Small Victories Are You Proud Of That You Have Accomplished?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

This is a perfect one! So much bravery needed!! Proud of you!

September 26, 2022

Have You Worked With A Physical Therapist? What Kind Of Exercises Did You Do?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Yes, I have been going to physical therapy regularly, two days a week, since I was five years old. It has an importance for us that should not be underestimated.

September 16, 2022

What Is A Typical Meal For You? Do You Have A Favorite?

A mySMAteam Member asked a question 💭
San Francisco, CA
A mySMAteam Member

Chicken and Salad

September 14, 2022
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