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What Is The Ideal Diet For A Vegetarian SMA Patient ? Any Leads Is Appreciated
It all depends on what type of SMA you have. I think you should ask your doctor for the best advice.I wish you the best! And Happy Thanksgiving!!
Lifting Weights - Causing Or Limiting Atrophy?
Hi all. The advice is so conflicting on the topic of lifting weights. I'm a strong type 3. I can still feel good muscle in my arms and it exists (albeit not great) in my legs. Is lifting weights ok or are we to limit our exercise to lifting our own body weight only? I am on Evrysdi.
EricOvelgone, I feel the best for everyone is to ask their doctor who is treating their SMA about working out. This way you and others have no confusion. Just my opinion...
Bipap
Please answer, I only use the bipap device when sleeping. Is it possible that I do not use gaseous breathing in the future?
I would ask your doctor that question. I wish you the best!!
How Is Everyone Doing
I am doing fine expect with this cold.
Does Anyone Get Random Muscle Spasms Especially When Relaxing In Bed?
Yes, -- behind left or right knee -- back of thigh. Also mid back, sometimes, sometimes right
I use baclophen and essential oils - rub - avocado oil with ginger oil mixed. Good question - thanks.
What's One Thing About SMA You Feel Isn't Talked About Enough?
Caregivers, how to manage them and have a independent life as much as possible
Does Anyone Know Where I Could Sell Our Used Ki Mobility Wheelchair In Texas?
Does Risdiplam Cause Constipation Or Acidic Stools?
My daughter has been dealing with constipation lately. Wasn’t sure if it is Risdiplam related or not. When she does poop and it’s soft it burns her bottom. She will get a raw butt quick. Any suggestions on how to help soften her stool? She turned one in December. She can eat soft solid foods by mouth and drink liquids by mouth. We have a gtube but do not currently use it.
Does Anyone Know How To Stop The Back Spasming - Morning - And At Night? Ty Best, Lynn
Baclophen helps, are there any essential oils, to help the spasms to subside?
Headrest Recommendations
Hiii! You see, I have sma 2 and my neck is a little weak, I have been looking for a comfortable headrest for a long time but I have not been able to find one. They are all too big or do not reach the back of my neck, especially because my backrest is too high and I have been told that it can not be lowered. At home I have no problems but to go out in the street or to travel by car I have to take one of those neck pillows that are used to sleep on airplanes. I would like to replace it with… read more
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