Quick Links
Resources
About mySMAteam
Powered By
Hi Everyone
Hello
My Day Has Been Good.
Any day.
In What Ways, If Any, Has Your SMA Affected How You Consume Alcohol?
I use to drink a lot beer. I give it up when I was marry. I still donβt drink after my divorce. I only drink Pepsi also water sometimes drink a energy drink.
I Have Scoliosis And Nowadays Feeling Very Tired Can't Sit
Do you use ventilators while sleeping? I apologize if my question bothers you
Scoliosis
Does scoliosis cause death
So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a⦠read more
Zolgensma For Adults
There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.
Wow, this is the first I've read of this. Can anybody confirm?
What Are New Life Hacks You've Learned To Better Manage Your Life With SMA?
Never give up. Do everything at your pace everyday. Stay active as much as you can. Invent shortcuts for certain things to get them done. Be greatful n happy
List Of Questions To Ask Neuromuscular Specialist For First Appointment After Finding Sma Type 4 In Myself
Iβm scheduled for my first appt with a specialist to address finding sma in my genetic testing markers when pregnant with my child at 12 weeks. Apparently I have type 4 and looking to get some truth about what this means for me. Iβm 34. Anything specific I should ask in addition to the obvious questions?
Christina, this breaks my heart. It can be hard to share and ask for help. Do you have a good neuro team?
How Do Scoliosis Symptoms Affect Your Daily Life?
Yes
What Is The Ideal Diet For A Vegetarian SMA Patient ? Any Leads Is Appreciated
It all depends on what type of SMA you have. I think you should ask your doctor for the best advice.I wish you the best! And Happy Thanksgiving!!
Sign up for free!
Continue with Facebook
Sign up with your email
